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Dandy
Kids Documentary
Dandy Kids is a documentary about families who share their
life experiences of looking for answers from a limited
number within the medical community. Over and over again
families struggle to find answers for a diagnosis for which
the cause and treatment are not known. Many are told
pregnancies should be terminated, and that the prognosis is
hopeless. Dandy Kids will depict the experts, advocates, and
ultimately the Heroes who by way of faith, perseverance, and
unconditional love live life to the fullest every day! Many
times this is done minute by minute, second by second, and
in the research labs chromosome by chromosome. This
documentary is being made in conjunction with Congress,
Researchers and those families effected by the various types
of Dandy Walker malformations, to promote research and raise
awareness, and give HOPE! |
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One boy's Aunt
connects with families around the world in search of of what it
means to live with the many faces of Dandy Walker Syndrome, and how
she can help those receiving a diagnosis to look for answers. |
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Calendar of Events
Dandy Kids Documentary Sneak Preview
January 17, 2008
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"Dandy Kids "
Coming to Washington DC on Capitol Hill
April 3rd,2008
Award Winning documentary successfully screened for
Congress at the US Capitol -
Click Here |
The Dandy Walker Alliance Hits
Maryland Senate Floor
Feb 29th!
The Dandy Walker Alliance hearing is scheduled with the Maryland
Senate at 1PM on Feb 29. regarding declaring the month of May as for
Dandy Walker Syndrome and Hydrocephalus awareness Month. If your in
the Maryland area please show your support by attending this
hearing!
This could very well be the start of a national awareness month. |
Dandy Walker Syndrome Family
Conference
Denver, Colorado -
April 23, 24, 25, 2009
Announcing Dandy Walker Syndrome Family Conference in Denver
Colorado, April 23, 24, 25, 2009 Hosted by The Hunter Dandy Kids
Foundation and the filmmakers of Dandy Kids. The first event will be
the evening of April 23,and the last event will end on the evening
of April 24th,so departure will be on the Morning of April
25th,2009.
If you would be interested in attending this event please pre
register by sending an email to
tamburks@comcast.net By pre-registering this
will allow us to plan on location. It will be held at either one of
the Universities, or hospitals. We will have small breakout groups
for families.
We want this to meet some of your needs so any suggestions would be
considered.
This conference is the first on DWS to allow parents and families
affected by DWS, DWM, DWV to network and interface and share life
experiences with each other. The conference will also have
physicians, researchers, and other experts in attendance.
Hotel rooms are being blocked out for discounted rates.
Group Airfare rates are being negotiated.
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